Program Offers TLC To Older Adults And Their Homes So They Can Stay Put

Nov 26, 2019
Originally published on November 26, 2019 4:04 pm

Eighty-three-year-old Betty Givens welcomes two visitors to the home she shares with her daughter in Riverside, Calif.

"Hi, how are you?" asks Melinda Underwood, an occupational therapist.

"Oh, a little lightheaded," Givens says, almost apologetically.

Underwood and clinical social worker JoJean Harper are concerned, but it's one of many things they can address that will help Givens remain in her home as long as possible.

Underwood and Harper are from a program called CAPABLE: Community Aging in Place — Advancing Better Living for Elders. Givens, like the vast majority of older Americans, wants to age in her own home. The CAPABLE program tries to make that happen.

Sometimes it gets hard for older people to do the things that make independent living possible, such as cook a meal or get in and out of the bath. So CAPABLE targets these obstacles, not just with therapy for the individual, but with some TLC for the home.

For example, during the visit, Underwood explores Givens' home to identify the physical challenges it presents, including making sure the kitchen is functional and that it's not too dangerous for Givens to use the two large steps leading to the laundry.

This is Underwood's third visit, so she's well aware of Givens' challenges.

"Her back starts to bother her when she walks too far," says Underwood. Givens is a Jehovah's Witness, so "she likes to go around to people's houses with other members of the church and that's something that she's kind of limited in lately because she can't walk very far."

In the CAPABLE program, older adults set their own goals, and Givens' goal is no surprise — to walk better. She lives up a steep driveway, so even going to get the mail has become an extreme sport.

"It's as hard going down as coming up," Givens says. "I've never fallen, but [I'm] kind of wobbly."

This is where CAPABLE can make a difference, by both treating Givens' medical issues and transforming her environment. Underwood suggests that Givens needs a railing installed along the driveway so she has something to hold on to. She goes out to take measurements so she can get a quote from a handyman.

Meanwhile, clinical social worker Harper discusses ways that Givens can improve her diet and manage her pain. Harper will also do some strengthening exercises with Givens so that when the railing is installed, Givens is strong enough to use it.

It's rare for a health care plan to include home repair. Sarah Szanton, a professor at Johns Hopkins University's School of Nursing, got the idea for CAPABLE when she was a nurse practitioner treating homebound seniors more than a decade ago.

"I had a 101-year-old patient who got around her apartment in a wheelchair," recalls Szanton, "and the doorway to the kitchen was too narrow to get into her kitchen with the wheelchair. And at 101 she had to get onto her knees to get into her kitchen."

Another patient of Szanton's back then would throw Szanton the keys from a second-story window because she couldn't get down the stairs to open the door. Another would crawl to the door to let Szanton in.

Szanton, a professor at Johns Hopkins University's School of Nursing, says studies show that CAPABLE makes a difference.
Courtesy of the Heinz Awards

"I was looking at their diseases, like diabetes, heart failure, arthritis," says Szanton, "and I realized we needed to do something more to help older adults age independently at home."

Today there are 29 CAPABLE programs in 15 states. Some are offered by private insurance Medicare Advantage plans, like the one that Givens has. Others are run by Meals on Wheels, Habitat for Humanity or local aging organizations. In most programs, an occupational therapist and a nurse make home visits over four months. Depending on the patient's goals, they figure out what home improvements are needed. Szanton says that while the programs differ slightly from place to place, studies show that CAPABLE makes a difference.

For example, one study showed that the number of difficulties patients had with the activities of daily life were cut in half. "So they go from not being able to bathe to being able to bathe or not being able to get dressed to be able to get dressed," says Szanton.

Betty Givens (left) and clinical social worker JoJean Harper.
Ina Jaffe/NPR

CAPABLE is also cost-effective.

"Evaluators for the government have found that it saves $22,000 on average per person, and it only costs [per patient] $3,000."

"CAPABLE is a great example of a proposal that is very creative," says Len Nichols, a health care economist at George Mason University. "A lot of stuff outside the normal medical sphere affects health and ultimately [affects] cost," he explains.

Nichols was until recently a member of a committee that makes recommendations to Medicare on new ways of offering services and new ways of paying for them. The committee evaluated CAPABLE last spring, "and we all were unanimous in supporting it going forward," says Nichols.

That's no guarantee that Medicare will someday pay for services like CAPABLE, though it would make them easier for older adults to access.

But right now, Givens is convinced it's going to work for her "with the help of the girls coming. This is motivating to me," she says.

So if you live in Riverside, Givens and her church friends may be ringing your doorbell someday soon.

Copyright 2019 NPR. To see more, visit https://www.npr.org.

RACHEL MARTIN, HOST:

The vast majority of older adults say they want to age in their own homes, but sometimes it's hard for them to do the things that make that possible, like cook a meal or get in and out of the bathtub. NPR's Ina Jaffe has this story about one innovative program designed to help.

MELINDA UNDERWOOD: Hi. How are you?

BETTY GIVENS: Oh, a little light-headed.

JOJEAN HARPER: Oh. That's not good.

UNDERWOOD: Oh, no.

INA JAFFE, BYLINE: Eighty-three-year-old Betty Givens greets two visitors to the home she shares with her daughter in Riverside, Calif. They're from a program called CAPABLE, which stands for Community Aging in Place Advancing Better Living for Elders. One of the visitors is occupational therapist Melinda Underwood. It's her third time at Givens' home in the past few weeks so she knows her problems.

UNDERWOOD: Her back starts to bother her when she walks too far. Another thing she does is - she's a Jehovah's Witness, so she likes to go around to people's houses with the other members of the church, and that's something that she has kind of been limited in lately because she can't walk very far.

JAFFE: So Betty Givens' goal is to improve her walking. At this point, just getting the mail has turned into an extreme sport because she has to walk down a long, steep driveway.

GIVENS: I've never fallen, but kind of wobbly a little.

JAFFE: This is work CAPABLE can make a difference - by both treating Givens' medical issues and transforming her environment. Melinda Underwood suggests that what Givens needs is a railing installed along the driveway so she has something to hold on to.

UNDERWOOD: I am going to take some measurements of the driveway so that I can let the handyman know so I can get a more accurate quote.

GIVENS: OK.

JAFFE: But CAPABLE isn't all about railings and grab bars. While Underwood is outside, social worker JoJean Harper tells Givens that she can help her with some of her medical challenges.

HARPER: We'll review your medications. I have some exercises, some strength building, that we're going to go through and do together.

JAFFE: So once the handyman installs that railing, Givens will be able to take advantage of it. It's rare for a health care plan to include home repair. Sarah Szanton, a professor at the Johns Hopkins School of Nursing, got the idea for the program when she was a nurse practitioner treating homebound seniors more than a decade ago.

SARAH SZANTON: I had a 101-year-old patient who got around her apartment in a wheelchair, and the doorway to the kitchen was too narrow to get into her kitchen with the wheelchair. And at 101, she had to get onto her knees to get into her kitchen.

JAFFE: Another patient of Szanton's would throw her the keys from a second-story window because she couldn't get down the stairs to open the door. Another would crawl to the door to let Szanton in.

SZANTON: I was looking at their diseases - like diabetes, heart failure, arthritis - and realized we needed to do something more to help older adults age independently at home.

JAFFE: Today, there are 29 CAPABLE programs in 15 states. Some are offered by Medicare Advantage plans, like the one that Betty Givens has; others are run by Meals on Wheels, Habitat for Humanity or local aging organizations. In most programs, an occupational therapist and a nurse make home visits over four months, and depending on the patient's goals, they figure out what home improvements are needed. Szanton says that while the programs differ slightly from place to place, studies show that CAPABLE makes a difference.

SZANTON: Seventy-five percent of the people in the program improve. So they go from not being able to bathe to being able to bathe or not being able to get dressed to being able to get dressed.

JAFFE: And CAPABLE is also cost-effective.

SZANTON: Evaluators for the government have found that it saves $22,000 on average per person, and the program only costs $3,000.

LEN NICHOLS: CAPABLE is a great example of a proposal that is very creative.

JAFFE: Says Len Nichols, a health care economist at George Mason University.

NICHOLS: Because a lot of stuff outside the normal medical sphere affects health and ultimately cost.

JAFFE: Nichols was a member of a committee that makes recommendations to Medicare on new ways of offering services and new ways of paying for them. The committee evaluated CAPABLE last spring.

NICHOLS: And we all were unanimous in supporting it going forward.

JAFFE: That's no guarantee that Medicare will someday pay for services like CAPABLE, making them easier to access. But right now Betty Givens is convinced it's going to work for her.

GIVENS: With the help of the girls, you know, coming, this is motivating to me.

JAFFE: So if you live in Riverside, Calif., Betty Givens and her church friends may be ringing your doorbell someday soon.

Ina Jaffe, NPR News.

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